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11. Reporting and Analytics

This section covers the reporting and analytics capabilities provided by the system, with a focus on patient demographics, mutations, and relationships.

PowerBI Dashboard

  • Provides real-time reporting on data such as:
    • Number of registered patients.
    • Age groups and demographic distribution.
    • MECP2 mutation statuses and other genetic data.

Custom Reports

  • Administrators can generate custom reports based on specific filters (e.g., all patients with a clinical diagnosis, patients under 5 years old).
  • Reports can be exported to CSV for sharing with external stakeholders or further analysis.

Anonymized Data Exports

  • All reports are anonymized to protect the privacy of patients and contacts.
  • Sensitive fields such as names, emails, and birthdates are hashed or removed.